Upcoming events

    • Mon, January 01, 2018
    • Mon, December 31, 2018
    • DSAIA Online Learning Center

    Available ON DEMAND

    This series was created by Down Syndrome Affiliates in Action in order to provide a basic course in board development and governance. From Board Development 101 to Strategic Planning, this series walks you through orientation, board roles, fundraising, responsibilities and more. In each section, you'll find additional reading materials as well as a check on what you learned.

    This is a great course for an individual forming an organization, new board member instruction or required learning for a full board. From Board Development 101 to Strategic Planning, this series addresses the primary aspects of board training and development featuring professional presenters from the nonprofit community.

    This course is free for DSAIA members and only $250 for nonmembers. 

    Special offer for nonmembers: After completion, the price of the course will be deducted from your first year's membership fee.  For a special group rate offer (to give your entire board access to the course), contact DSAIA for more details.

    • Thu, February 22, 2018
    • (MST)
    • Sun, February 25, 2018
    • (MST)
    • Hyatt Regency Tech Center, Denver, CO
    Registration is closed

    We're taking our leadership training to a HIGHER level in 2018 - a Mile High! Join over 200 other Down syndrome association leaders in beautiful Denver, Colorado for an amazing 3 days of nonprofit, leadership, fundraising, and programming training. Plus, take advantage of the experience and knowledge of others as you make lasting connections that will benefit you and your organization for years to come. 

    Remember that DSAIA members receive an additional $200 per person discount off registration fees! (Discount is reflected upon log-in.)

    Have questions? Click here for our FAQ for the following information:

    • Who should attend?
    • Hotel costs
    • Worksheet to help gain approval from your organization
    • Travel options/discounts
    • Cost comparisons
    • Refund policy

    • Fri, February 23, 2018
    • Sun, February 25, 2018

    From visionary ideas to practical management tips, Down syndrome group leaders know that no other conference comes close to providing the useful tools and knowledge that the annual DSAIA event offers.

    As a sponsor of the DSAIA 12th Annual Leadership Conference, you can be involved in bringing top-level training and networking opportunities to Down syndrome nonprofit organizations while bringing your much-needed product/service to these amazing organizations.

    All sponsors receive:

    à Company logo on DSAIA conference website

    à Recognition in DSAIA conference communications and other promotional emails

    à Recognition on on-site sponsor signage

    à Virtual exhibitor booth on conference website

    à First right of refusal for the same sponsor category at the 2019 event (deadline is June 30, 2018)

    PLUS - each level of sponsorship has other amazing opportunities!

    Opportunities are limited!

    Sponsorships are available on a first-come, first-served basis, so be sure to reserve your sponsorship early. Please note: Past sponsors receive a first right of refusal.



    • Fri, February 23, 2018
    • 8:30 AM (MST)
    • Sun, February 25, 2018
    • 5:00 PM (MST)

    Can't make it to Denver for the 2018 DSAIA Leadership conference? 

    DSAIA will be streaming live the most talked about sessions including each day’s general sessions, and interesting discussions between veteran leaders and professionals. Thanks to Global Down Syndrome Foundation and ds-connex for making this online event possible.

    The livestream pass includes ALL general sessions and keynote presentations along with special content and breakout sessions.

    Friday - Opening Keynote - Chris Ulmer

    Friday - Afternoon General Session - Adult Medical Care Guidelines

    Saturday - Keynote - Travis Akins and Patti Saylor

    Breakout sessions include:

    • Board Recruitment That Really Rocks!
    • Building Alliances with Medical Organizations, Universities & Depts of Health To Break Barriers and Update Views About Down Syndrome
    • Strategic Planning: A Work in Progress, How We Did It and How You Can Too
    • Do-It-Yourself PR
    • Supporting Families: Growing Your Organization To Address the Needs of Families Across the Lifespan
    • You've Got a Board, But Is It Effective?

    • Thu, March 08, 2018
    • 12:00 PM - 1:15 PM (EST)
    • At your desk!

    The induction process for new volunteers is arguably the most critical stage of the volunteer life cycle. Although we focus much of our attention on attracting volunteers, it is what they experience when they join that actually determines whether they will stay.  

    In this webinar, you will learn how to map and analyze your current volunteer onboarding and orientation practices and pinpoint areas that need attention. We’ll cover what volunteers adjust to their new environment and how you can take proactive steps to help them settle in comfortably.  We’ll also explore how volunteer needs change over time and how you can foster deeper and deeper commitment to your cause.

    Improving the volunteer experience doesn’t need to be complicated or costly. Even small changes in the way you do business can lead to the kind of deep engagement that helps teams succeed. You can also set the stage for greater word of mouth marketing and better recruitment results. We will show you how!

    You will learn …

    •       How to map the volunteer journey to discover hidden needs

    •       How to plan an integrated onboarding strategy

    •       How to tap neuroscience & psychology to strengthen connections & commitment

    You will get these BONUS materials ... 

    •       Volunteer Onboarding Journey Map Template

    •       Volunteer Levels of Engagement Worksheet

    •       Integrated Onboarding Planning Worksheet

    •       PDF of the Slides 

    • Fri, June 01, 2018
    • Fri, May 31, 2019
    • DSAIA Online Learning Center
    • 0
    Join waitlist

    Brain-Based, High Interest Support Program That Works for All Ages 

    ONLINE COURSE/Annual Subscription
    Available ON DEMAND

    Special Price for DSAs: As low as $260 per year

    Online Training Followup for Coaches
    Organized by Natalie Hale of Special Reads for Special Needs

    In partnership with Natalie, DSAIA is offering a subscription course for Coaches in Centers.

    Annual subscription includes:

    • Initial training on materials, set up and HOW TO TEACH
    • Monthly live screen-to-screen training meetings
    • Permanent access to the links of those meetings
    • Interactive Q&A in each session
    • Materials (amount/type depending on subscription level)

    As organizations progress in establishing and running Reading Centers, questions and challenges will surface; this ongoing training will give participants a forum for finding answers and solutions. 

    Considering starting a reading program in the next year? This is a perfect opportunity to learn how to set up and operate a program, learn from others' experiences, and get great new training each month!

    • Mon, December 31, 2018
    • DSAIA Online Learning Center

    Available ON DEMAND

    This series is for the novice fundraiser or those staff/board wishing to implement a true donor development plan for major and planned gifts in their organization.

    Do you have a plan in place to identify, cultivate and solicit major donor gifts? The secret to obtaining major gifts (and even planned gifts) is building a lasting relationship with your donors. But...how to begin? How exactly is it done? Who is responsible for the plan and its execution?

    In this three-part series, you'll learn how to develop a plan which will take you through the four parts of a successful donor development initiative:

    1. Identifying your potential donors
    2. Cultivating those donors
    3. Soliciting those donors
    4. Implementing good donor stewardship

    You'll learn how to pick your team, set priorities, set realistic goal amounts and develop a strategy for each donor as well as be warned of the pitfalls and how to avoid them. Attendees will you receive examples of forms/charts which to use in the process.

Past events

Tue, January 23, 2018 To Gala or Not To Gala (201)
Thu, January 18, 2018 Topical Call: Small But Mighty (Fundraisers)
Mon, January 08, 2018 Educational Inclusive Best Practices
Sun, December 31, 2017 Grant Writing Course
Sun, December 31, 2017 Board Development Course
Thu, December 07, 2017 Medical Concerns in Individuals with DS-ASD
Wed, December 06, 2017 Webinar Wednesdays: Holiday Edition
Tue, December 05, 2017 Designing Educational Programs for Students with DS-ASD
Tue, November 14, 2017 Reconnect. Relationship Tools for Parents of Children with Special Needs
Tue, November 14, 2017 13th Annual Massachusetts Down Syndrome Congress Educators Forum
Wed, November 08, 2017 What Are Your True Program Costs?
Wed, October 11, 2017 The Key to Inspiring & Engaging Your Mid-Level Donors
Tue, October 10, 2017 Multi-Cultural Considerations: Co-Occurring Down Syndrome and Autism
Thu, September 14, 2017 ABLE Accounts: People with Down Syndrome are Finally #ABLEtoSave for the Future!
Tue, September 12, 2017 Addressing Problem Behaviors in Individuals with DS-ASD
Thu, August 24, 2017 Software Safari: Wild Apricot
Wed, August 23, 2017 DSAIA Membership Meeting
Wed, August 16, 2017 Calm Down! It's Really Not a Crisis: Planning for and Managing Major Issues, What to Do and What to Say
Tue, August 01, 2017 Topical Call: Walk Team Ideafest!
Fri, July 21, 2017 Member Appreciation Reception
Wed, July 12, 2017 Frame That Smile: Tips for Creating and Using Facebook Frames to Reach Further
Thu, June 22, 2017 Potty Time! A Journey to Successful Toilet Training
Wed, June 07, 2017 Creating a Monthly Giving Program: A Solution to Donor Retention and Financial Sustainability
Wed, May 24, 2017 Topical Call: Dealing with Staff and/or Board Transition
Wed, May 17, 2017 Multimodal Approach to Teaching Children with Down Syndrome Speech & Language Skills
Wed, May 17, 2017 Planning for Meaningful Inclusion – A Protocol Driven Process (An MDSC Education Series Webinar)
Wed, May 10, 2017 Advanced Crowdfunding (201)
Tue, April 25, 2017 Crowdfunding 101
Tue, April 04, 2017 Time to Play! Using Play-Based Learning Opportunities to Support Younger Children
Thu, March 16, 2017 Supporting Positive Behavior in Children and Teens with Down syndrome: A neurodevelopmental perspective
Thu, March 09, 2017 Down Syndrome Cognition Research: A Dad's Perspective
Tue, March 07, 2017 5 Qualities of a "Rock Star" Board
Fri, February 24, 2017 DSAIA 2017 Conference Livestream
Thu, February 23, 2017 DSAIA Leadership Conference (with option to add on NDSS Conference)
Thu, February 23, 2017 NDSS Buddy Walk® Conference (with option to add on DSAIA Conference)
Thu, February 16, 2017 UDL Toolbox for Teachers and Parents: Empowering Learning for ALL
Thu, February 16, 2017 Potty Time! A Journey to Successful Toilet Training
Tue, February 07, 2017 World Down Syndrome Day: Random Acts of Kindness 2.0
Wed, January 25, 2017 Developing Independence: Strategies for the Classroom
Thu, January 19, 2017 Who Helps the Helpers? Self-Care for Affiliate Leaders
Thu, January 12, 2017 Every Student Succeeds Act: A 3-Part Complete Series
Wed, December 07, 2016 Topical Call: Supporting Families with Complex Needs
Wed, November 16, 2016 Leading More Effective Board Meetings
Mon, November 07, 2016 Software Safari
Thu, November 03, 2016 The Art and Science of Retaining Digital Donors
Mon, October 31, 2016 Moving Up to Executive Director
Mon, October 31, 2016 How To Lose A Board Member
Mon, October 31, 2016 E-Newsletters That Make Your Donors Give
Mon, October 31, 2016 10 Steps to a Successful Fundraising Campaign
Wed, October 19, 2016 DSAIA Topical Call: Self-Advocates as Board Members
Wed, September 21, 2016 Let’s Get on The Same Page! – Designing Effective Home/School Communication Systems
Thu, August 18, 2016 Cash Is King: Managing Cash Flow For Nonprofits
Wed, August 17, 2016 DSAIA Topical Call: Pros & Cons of Center-Based Programming
Tue, August 09, 2016 Postponed! Tech Tuesdays: Video Apps
Tue, July 19, 2016 The Invisible Yellow Line: Clarifying Board and Staff Roles
Tue, July 12, 2016 Tech Tuesdays: Fundraising Apps
Wed, June 22, 2016 An Inclusive Initiative: How One High School Created a Mentor Class
Wed, June 15, 2016 DSAIA Topical Call: Sibling Support
Tue, June 07, 2016 Tech Tuesdays: Social Media-Friendly Images
Thu, May 26, 2016 Designing and Executing a 5 Star Board Retreat
Tue, May 17, 2016 Tech Tuesdays
Tue, May 03, 2016 Sharing Knowledge: Donor & Event Registration Software
Wed, April 20, 2016 DSAIA Topical Call: Member Engagement
Wed, April 20, 2016 Fundraising the SMART Way
Thu, March 31, 2016 Let's Get Productive! Sharing Technology Ideas To Help Your DSA
Wed, March 16, 2016 DSAIA Hangout: 321 eConference & Cool Tech Tools
Wed, February 24, 2016 Grant Writing Like a Boy Scout
Wed, February 17, 2016 DSAIA Topical Call: Community Groups
Tue, January 26, 2016 Creating a "Buddy" Program at Your Local Junior High
Thu, December 17, 2015 10 Steps to a Successful Fundraising Campaign
Wed, December 16, 2015 DSAIA Cafe: Adding Top Level Staff
Wed, December 09, 2015 DSAIA Cafe: Building a More Productive Board
Wed, December 02, 2015 DSAIA Cafe: The "Likeable" Organization
Tue, December 01, 2015 For Your Ears Only: Board Member Topical Call
Wed, November 25, 2015 DSAIA Cafe: Teen & Young Adult Programming That Works!
Wed, November 18, 2015 DSAIA Cafe: Firing Lousy Board Members (And Helping Others to Succeed)
Tue, November 17, 2015 Bodies & Boundaries: How To Address Questions About Sexuality from Your Membership
Wed, November 11, 2015 DSAIA Cafe: Wildly Successful Events
Tue, November 03, 2015 For Your Ears Only: DSA Staff Topical Call
Sun, November 01, 2015 Board Development Series Special
Wed, October 07, 2015 Grantwriting for Organizational Survival
Thu, September 17, 2015 Teen & Young Adult Programming That Works!
Thu, August 20, 2015 Are You Ready for a Capital Campaign?
Thu, September 26, 2013 Law Enforcement, First Responders & People With Disabilities: The Training Curriculum and Engaging Local Law Enforcement & First Responders for Affiliate Organizations
Tue, September 24, 2013 Online Fundraising Best Practices for Nonprofits
Thu, September 05, 2013 eCivis Online Training
Thu, September 05, 2013 Customer Service: Why It's The Most Important Investment You'll Make In Your DS Organization
Tue, August 13, 2013 Interactive Peer Presentations and Disability Awareness: Common Expectations
Thu, August 08, 2013 The "Likeable" Organization
Tue, July 30, 2013 How To Present a 'Back To School' Workshop
Thu, July 25, 2013 Direct Educational Support - Is The Learning Program™ Right For Your Organization?
Sun, June 30, 2013 How To Build or Enhance Your Parents First Call Program
Sun, June 30, 2013 How To Lose An Executive Director
Thu, June 27, 2013 How To Lose A Board Member
Tue, June 11, 2013 How To Build or Enhance Your Parents First Call Program
Tue, May 21, 2013 How To Lose An Executive Director
Thu, May 16, 2013 What Your Sponsors Really Want
Tue, May 14, 2013 Latest Update: New Prenatal Testing Recommendations
Wed, May 08, 2013 What Your Sponsors Really Want
Mon, April 29, 2013 Understanding the Affordable Care Act's Impact on Your Members with Down Syndrome
Tue, April 16, 2013 Facebook Q & A
Mon, April 15, 2013 Monthly Giving E-Course
Wed, March 20, 2013 How to Captivate and Engage Constituents with Your Website
Tue, March 05, 2013 How To Read Nonprofit Financial Statements: What Executives & Leaders Need To Know About the Numbers
Thu, February 28, 2013 Zero to Sixty: Fast Track Your Young Group to Look Like A Seasoned Professional
Thu, February 07, 2013 E-Newsletters That Make Your Donors Give
Tue, January 15, 2013 Donor Development Series
Tue, January 15, 2013 ManDatE VIP Webinar
Tue, January 08, 2013 LegalShield RSVP Webinar
Mon, December 31, 2012 The Urgency of Medical Outreach
Mon, December 31, 2012 A Healthier Life: Health & Wellness Program for Adults with Down Syndrome
Mon, December 31, 2012 Growing Grassroots Advocacy at the State Level
Mon, December 31, 2012 Budgeting for the Small Nonprofit
Mon, December 31, 2012 Building Bridges: Schools, Affiliates and Families Working Together
Mon, December 31, 2012 Divide & Conquer: Time Management for the Small Ds Organization
Mon, December 31, 2012 Holiday Party Planning Made Easy
Thu, December 20, 2012 Technology Series: Event Registration Software
Tue, December 11, 2012 Setting Your Fundraising Goals (And Creating a Plan To Make Them A Reality)
Tue, December 11, 2012 imATHLETE VIP Demo
Tue, December 04, 2012 Crowdrise VIP Offer Demo
Thu, November 29, 2012 Six in Sixty: November 2012
Tue, November 13, 2012 5 Technology Trends that Will Shape a New Reality for Nonprofits
Sat, November 10, 2012 Run for Your Money: Organizing a 5K
Thu, October 25, 2012 Run for Your Money: Organizing a 5K
Mon, October 22, 2012 Down Syndrome Awareness Month Ideas
Tue, October 09, 2012 Harmonic Treatment: Promote Healing, Health & Wellness
Thu, October 04, 2012 How You Can Help Pass a Down Syndrome Prenatal Testing Information Law in Your State
Tue, September 18, 2012 Crowdrise VIP Offer Demo
Wed, September 12, 2012 Next Chapter Book Club: Literacy & Learning for Adults with DS
Thu, August 30, 2012 Improving Your Fundraiser: Easy Steps To Increase Your Efforts
Thu, August 23, 2012 Building Bridges: Schools, Affiliates and Families Working Together
Tue, August 21, 2012 DSAIA Town Hall Meeting
Tue, July 31, 2012 Marketing Your Walk: Learn from a Pro!
Thu, July 26, 2012 Internal Control & Segregation of Duties for the Small to Medium-Size Organization
Tue, June 26, 2012 Board Development Series
Wed, June 13, 2012 Planning a Successful Conference (From Start To Finish)
Wed, May 09, 2012 Six in Sixty: May 2012
Thu, April 26, 2012 DSAIA Town Hall Meeting
Thu, April 26, 2012 Volunteer Management
Thu, April 19, 2012 Special Webinar with imATHLETE
Thu, March 29, 2012 Increase Your Silent Auction Revenue
Wed, November 30, 2011 Six in Sixty Series - November 2011
Thu, November 10, 2011 Moving Beyond the Spreadsheet: Databases!
Wed, November 02, 2011 Impact of New Prenatal Screening
Thu, October 20, 2011 Grandparents Webinar
Thu, October 13, 2011 Annual Reports Webinar
Wed, August 03, 2011 Firespring Website Webinar
Thu, July 28, 2011 Talk the Talk and Walk the Walk Conference Call
Tue, July 19, 2011 Get On Board!
Tue, May 24, 2011 Growing Grass Roots Advocacy
Thu, April 21, 2011 Divide & Conquer Webinar
Tue, April 12, 2011 Six in Sixty April 2011
Thu, March 24, 2011 Why DADS Webinar
Tue, December 28, 2010 Creative Fundraising Strategies for 2011
Tue, November 09, 2010 Budgeting Webinar
Tue, June 29, 2010 Six in Sixty - June 2010

Upcoming DSAIA Events

It's in our kids best interest to build a [Down syndrome] organization for the entire down syndrome community. I know my daughter but I don't know what the whole community needs without learning. And (DSAIA) is where I learn.

-Kelly Kulzer-Reyes, Kern Down Syndrome Network


Down Syndrome Affiliates in Action started as a conference bringing together outstanding leadership from Down syndrome organizations around the country. Learn More

Get in Contact

Down Syndrome Affiliates in Action
1335 34th St NE
Paris, TX 75462



Monday - Friday
8 am - 5 pm Central

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