Celebrating Down Syndrome Awareness Month!

Upcoming Webinars

    • Thu, September 13, 2018
    • (EDT)
    • Thu, November 08, 2018
    • (EST)
    • 3 sessions
    • Online!

    Register for ONE, TWO, or ALL THREE sessions!

    This three-part series takes the mystery out of fundraising, and puts your organization on the path to consistent, predictable income. Each of these webinars builds on the last one, so be sure to sign up for all three.  Our facilitator, Ellen Bristol, is an expert in improving the productivity of your fundraising efforts, by clarifying key issues you’ll want to manage for optimum performance.

    You are invited to complete the Leaky Bucket Assessment for Effective Fundraising, before the series starts; your answers will be collated and shared at the first session. All attendees will receive a copy of the presentation, plus all the templates and guidelines for instituting these ideas at your organization.

    Session 1: Why Your Nonprofit is Worth Funding.

    Do you really know why your funders invest in your nonprofit? The answers might surprise you. PS: the tax benefits are the very last thing on your funders’ minds.

    This session shows you what your nonprofit offers today, that’s appealing to funders, including many you might never have thought of or contacted.  You will how to:

    • Identify your value-added strengths, characteristics of your brand, mission and programs that get donors to give
    • “Package” those strengths with marketing messages appealing to your ideal funders
    • Draw funding prospects and current funders to you with persuasive messaging creating “warm” leads and easy ways to follow up


    Once your audience understands what you’re bringing to the table, they will be motivated to invest, stay involved, and encourage others to support you. There are lessons to be learned for every DSAIA member, regardless of the current size of your development team. 

    Please complete the Leaky Bucket Assessment when you register. All attendees will receive a copy of the presentation, plus all the templates and guidelines for instituting these ideas at your organization.

    Session 2: Finding the Right Donors

    A sure-fire way to fail at fundraising is to spend too much time trying to cultivate funders who either don’t want to give, or lack the capacity to make a difference. 

    In Session 1, you learned why funders want to support your nonprofit. Now let’s make sure you’re attracting the right ones! Your “ideal funder” is one who wants to support your mission, is determined to make sure you can continue to deliver at ever higher levels of impact, and who believes supporting you will make a difference – in their lives as well as the lives your nonprofit touches directly. You will learn:

    • How to engage your funders using proven techniques to gain rapport
    • Convert engagement to interest in making an investment
    • Demonstrate how investing in your organization satisfies their charitable motivations


    Three hundred million people live in the United States. You don’t need them all to reach your desired results; you just need the ones whose charitable motivations match what you have to offer. This session shows how you can find, gain the attention of, and build rapport with those who already want to support you – even if they don’t currently know you exist!

    If you haven’t completed the Leaky Bucket Assessment yet, please do so. All attendees will receive a copy of the presentation, plus all the templates and guidelines for instituting these ideas at your organization.

    Session 3: How the Board Can Help – Without Asking!

    Most nonprofits expect (or at least wish) their board members to participate in the fundraising effort. Yet few report their boards actually do so successfully.  In this session, we will share methods you can use starting right away, to make it easier for board members to succeed at raising money, even when they say “but we hate to ask!”

    In Session 1, you learned how to articulate your value proposition to the funding community. In Session2, you figured out which funders are right for you, and how to engage them quickly and effectively. In this session, we will show you how to:

    • Free your board members from the fear and anxiety they may associate with raising money
    • Provide them with useful tools, talking points, and collateral to help them engage their connections
    • Change the conversation board members have with prospective funders, to their mutual benefit
    • Deliver “hot” prospects to staff or others comfortable with asking for money


    Board member reluctance is often based on a lack of understanding: what to offer, why it’s important, and how to deliver the message. Let’s provide them with the information and techniques they need to get the job done. Even if you have a large development shop, your board members can improve donor retention, develop new funding prospects, and facilitate introductions. Here’s how to help them do so.

    If you haven’t completed the Leaky Bucket Assessment yet, please do so. All attendees will receive a copy of the presentation, plus all the templates and guidelines for instituting these ideas at your organization.



    Ellen will be happy to respond to any questions and concerns by email.  If you would like to schedule a consulting call, there will be a modest fee, which Ellen will split with DSAIA to support future programs. You can schedule time with Ellen by visiting her calendar.


    • Thu, October 18, 2018
    • 7:00 PM - 8:30 PM (EDT)
    • GoToWebinar

    DSAIA Affiliate-Presented Webinar

    Open to public: $25

    MDSC members: $15
    DSAIA members (available for your families): $15

    (See below for info on discounts)

    Eventbrite - Reconnect: Relationship Tools for Parents of Children with Special Needs

    Behavior problems impact 30% of children with Down syndrome. Left untreated, these same children often exhibit behavior problems as adults, limiting work and independent living opportunities. Many behavioral management tools are less effective for children with DS. This workshop will present the basic neuroscience of Down syndrome and how this informs effective behavior management, with practical strategies provided for use in the home and school settings from childhood through transition to adulthood.

    1. Participants will understand the basic brain profile in DS, in relation to behavior specifically.
    2. Participants will learn behavior principles and strategies that are effective in DS.
    3. Participants will understand the concepts of the neuroscience of DS and behavior management in DS in a manner that is flexible and can be applied to a wide variety of situations.


    Dr. David Stein is the founder of New England Neurodevelopment, LLC, a pediatric psychology practice in the greater Boston area of Massachusetts (www.NENeurodevelopment.com). He is a pediatric psychologist specializing in neuropsychological testing, behavioral and cognitive-behavioral therapy, and parent training. Dr. Stein speaks nationally and internationally about various topics in neurodevelopment including ADHD, learning disorders, intellectual disability, and Down syndrome. Dr. Stein is a graduate of Tufts University and William James College. He completed his clinical training at Harvard Medical School and Boston Children’s Hospital, where he remained on the faculty for several years, through 2016. Dr. Stein is the author of the book Supporting Positive Behavior in Children and Teens with Down Syndrome: The Respond, but Don't React Method (Woodbine House, 2016).

    *If you are a member of MDSC, contact MDSC at ktenglin@mdsc.org to obtain your discount code.

    *If you are a DSAIA member, you can pass along the savings to your families as well. Find out more at https://www.dsaia.org/mdscbehavior.  (Log-in required)

Past events (available in STACKS)

Wed, August 22, 2018 Building Relationships with Medical Organizations
Tue, July 24, 2018 Go Beyond the New Parent Packet
Tue, June 26, 2018 Building Resiliency for Transition-Age Youth and Adults with Down Syndrome
Wed, June 13, 2018 Inclusion within Community Recreation Programs
Tue, June 12, 2018 Annual Report MasterClass
Tue, May 29, 2018 Building Resiliency for Transition-Age Youth and Adults with Down Syndrome
Mon, May 14, 2018 Statewide Collaboration: Everybody Wins!
Tue, April 24, 2018 Tons of Money in the Mail: A Step by Step Guide to Getting Checks Rolling into Your Nonprofit Mailbox!
Thu, March 08, 2018 Onboarding Volunteers: Converting Joiners to Stayers
Tue, January 23, 2018 To Gala or Not To Gala (201)
Mon, January 08, 2018 Educational Inclusive Best Practices
Thu, December 07, 2017 Medical Concerns in Individuals with DS-ASD
Wed, December 06, 2017 Webinar Wednesdays: Holiday Edition
Tue, December 05, 2017 Designing Educational Programs for Students with DS-ASD
Tue, November 14, 2017 Reconnect. Relationship Tools for Parents of Children with Special Needs
Wed, November 08, 2017 What Are Your True Program Costs?
Wed, October 11, 2017 The Key to Inspiring & Engaging Your Mid-Level Donors
Tue, October 10, 2017 Multi-Cultural Considerations: Co-Occurring Down Syndrome and Autism
Thu, September 14, 2017 ABLE Accounts: People with Down Syndrome are Finally #ABLEtoSave for the Future!
Tue, September 12, 2017 Addressing Problem Behaviors in Individuals with DS-ASD
Thu, August 24, 2017 Software Safari: Wild Apricot
Wed, August 16, 2017 Calm Down! It's Really Not a Crisis: Planning for and Managing Major Issues, What to Do and What to Say
Wed, July 12, 2017 Frame That Smile: Tips for Creating and Using Facebook Frames to Reach Further
Thu, June 22, 2017 Potty Time! A Journey to Successful Toilet Training
Wed, June 07, 2017 Creating a Monthly Giving Program: A Solution to Donor Retention and Financial Sustainability
Wed, May 17, 2017 Planning for Meaningful Inclusion – A Protocol Driven Process (An MDSC Education Series Webinar)
Wed, May 10, 2017 Advanced Crowdfunding (201)
Tue, April 25, 2017 Crowdfunding 101
Tue, April 04, 2017 Time to Play! Using Play-Based Learning Opportunities to Support Younger Children
Thu, March 16, 2017 Supporting Positive Behavior in Children and Teens with Down syndrome: A neurodevelopmental perspective
Thu, March 09, 2017 Down Syndrome Cognition Research: A Dad's Perspective
Tue, March 07, 2017 5 Qualities of a "Rock Star" Board
Thu, February 16, 2017 UDL Toolbox for Teachers and Parents: Empowering Learning for ALL
Tue, February 07, 2017 World Down Syndrome Day: Random Acts of Kindness 2.0
Wed, January 25, 2017 Developing Independence: Strategies for the Classroom
Thu, January 19, 2017 Who Helps the Helpers? Self-Care for Affiliate Leaders
Thu, January 12, 2017 Every Student Succeeds Act: A 3-Part Complete Series
Wed, November 16, 2016 Leading More Effective Board Meetings
Mon, November 07, 2016 Software Safari
Thu, November 03, 2016 The Art and Science of Retaining Digital Donors
Mon, October 31, 2016 Moving Up to Executive Director
Mon, October 31, 2016 How To Lose A Board Member
Mon, October 31, 2016 E-Newsletters That Make Your Donors Give
Mon, October 31, 2016 10 Steps to a Successful Fundraising Campaign
Wed, September 21, 2016 Let’s Get on The Same Page! – Designing Effective Home/School Communication Systems
Thu, August 18, 2016 Cash Is King: Managing Cash Flow For Nonprofits
Tue, August 09, 2016 Postponed! Tech Tuesdays: Video Apps
Tue, July 19, 2016 The Invisible Yellow Line: Clarifying Board and Staff Roles
Tue, July 12, 2016 Tech Tuesdays: Fundraising Apps
Wed, June 22, 2016 An Inclusive Initiative: How One High School Created a Mentor Class
Tue, June 07, 2016 Tech Tuesdays: Social Media-Friendly Images
Thu, May 26, 2016 Designing and Executing a 5 Star Board Retreat
Tue, May 17, 2016 Tech Tuesdays
Tue, May 03, 2016 Sharing Knowledge: Donor & Event Registration Software
Wed, April 20, 2016 Fundraising the SMART Way
Thu, March 31, 2016 Let's Get Productive! Sharing Technology Ideas To Help Your DSA
Wed, February 24, 2016 Grant Writing Like a Boy Scout
Tue, January 26, 2016 Creating a "Buddy" Program at Your Local Junior High
Thu, December 17, 2015 10 Steps to a Successful Fundraising Campaign
Wed, December 16, 2015 DSAIA Cafe: Adding Top Level Staff
Wed, December 09, 2015 DSAIA Cafe: Building a More Productive Board
Wed, December 02, 2015 DSAIA Cafe: The "Likeable" Organization
Wed, November 25, 2015 DSAIA Cafe: Teen & Young Adult Programming That Works!
Wed, November 18, 2015 DSAIA Cafe: Firing Lousy Board Members (And Helping Others to Succeed)
Tue, November 17, 2015 Bodies & Boundaries: How To Address Questions About Sexuality from Your Membership
Wed, November 11, 2015 DSAIA Cafe: Wildly Successful Events
Thu, September 17, 2015 Teen & Young Adult Programming That Works!
Thu, August 20, 2015 Are You Ready for a Capital Campaign?
Thu, September 26, 2013 Law Enforcement, First Responders & People With Disabilities: The Training Curriculum and Engaging Local Law Enforcement & First Responders for Affiliate Organizations
Tue, September 24, 2013 Online Fundraising Best Practices for Nonprofits
Thu, September 05, 2013 eCivis Online Training
Thu, September 05, 2013 Customer Service: Why It's The Most Important Investment You'll Make In Your DS Organization
Tue, August 13, 2013 Interactive Peer Presentations and Disability Awareness: Common Expectations
Thu, August 08, 2013 The "Likeable" Organization
Tue, July 30, 2013 How To Present a 'Back To School' Workshop
Thu, July 25, 2013 Direct Educational Support - Is The Learning Program™ Right For Your Organization?
Sun, June 30, 2013 How To Build or Enhance Your Parents First Call Program
Sun, June 30, 2013 How To Lose An Executive Director
Thu, June 27, 2013 How To Lose A Board Member
Tue, June 11, 2013 How To Build or Enhance Your Parents First Call Program
Tue, May 21, 2013 How To Lose An Executive Director
Thu, May 16, 2013 What Your Sponsors Really Want
Tue, May 14, 2013 Latest Update: New Prenatal Testing Recommendations
Wed, May 08, 2013 What Your Sponsors Really Want
Tue, April 16, 2013 Facebook Q & A
Mon, April 15, 2013 Monthly Giving E-Course
Wed, March 20, 2013 How to Captivate and Engage Constituents with Your Website
Tue, March 05, 2013 How To Read Nonprofit Financial Statements: What Executives & Leaders Need To Know About the Numbers
Thu, February 28, 2013 Zero to Sixty: Fast Track Your Young Group to Look Like A Seasoned Professional
Thu, February 07, 2013 E-Newsletters That Make Your Donors Give
Tue, January 15, 2013 Donor Development Series
Tue, January 15, 2013 ManDatE VIP Webinar
Tue, January 08, 2013 LegalShield RSVP Webinar
Mon, December 31, 2012 The Urgency of Medical Outreach
Mon, December 31, 2012 A Healthier Life: Health & Wellness Program for Adults with Down Syndrome
Mon, December 31, 2012 Growing Grassroots Advocacy at the State Level
Mon, December 31, 2012 Budgeting for the Small Nonprofit
Mon, December 31, 2012 Building Bridges: Schools, Affiliates and Families Working Together
Mon, December 31, 2012 Divide & Conquer: Time Management for the Small Ds Organization
Mon, December 31, 2012 Holiday Party Planning Made Easy
Thu, December 20, 2012 Technology Series: Event Registration Software
Tue, December 11, 2012 Setting Your Fundraising Goals (And Creating a Plan To Make Them A Reality)
Tue, December 11, 2012 imATHLETE VIP Demo
Tue, December 04, 2012 Crowdrise VIP Offer Demo
Thu, November 29, 2012 Six in Sixty: November 2012
Tue, November 13, 2012 5 Technology Trends that Will Shape a New Reality for Nonprofits
Sat, November 10, 2012 Run for Your Money: Organizing a 5K
Thu, October 25, 2012 Run for Your Money: Organizing a 5K
Mon, October 22, 2012 Down Syndrome Awareness Month Ideas
Tue, October 09, 2012 Harmonic Treatment: Promote Healing, Health & Wellness
Thu, October 04, 2012 How You Can Help Pass a Down Syndrome Prenatal Testing Information Law in Your State
Tue, September 18, 2012 Crowdrise VIP Offer Demo
Wed, September 12, 2012 Next Chapter Book Club: Literacy & Learning for Adults with DS
Thu, August 30, 2012 Improving Your Fundraiser: Easy Steps To Increase Your Efforts
Thu, August 23, 2012 Building Bridges: Schools, Affiliates and Families Working Together
Tue, August 21, 2012 DSAIA Town Hall Meeting
Tue, July 31, 2012 Marketing Your Walk: Learn from a Pro!
Thu, July 26, 2012 Internal Control & Segregation of Duties for the Small to Medium-Size Organization
Tue, June 26, 2012 Board Development Series
Wed, June 13, 2012 Planning a Successful Conference (From Start To Finish)
Wed, May 09, 2012 Six in Sixty: May 2012
Thu, April 26, 2012 Volunteer Management
Thu, April 19, 2012 Special Webinar with imATHLETE

Online Courses

Leaders' Circles

It's in our kids best interest to build a [Down syndrome] organization for the entire down syndrome community. I know my daughter but I don't know what the whole community needs without learning. And (DSAIA) is where I learn.

-Kelly Kulzer-Reyes, Kern Down Syndrome Network


Down Syndrome Affiliates in Action started as a conference bringing together outstanding leadership from Down syndrome organizations around the country. Learn More

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Down Syndrome Affiliates in Action
1335 34th St NE
Paris, TX 75462



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