About Us

Our board represents a cross-section of our community and has a passion for our organization and those we serve. The board and staff work hard to ensure long-term sustainability of the organization and oversee that our organization continues to deliver quality benefits to our members.

Interested in becoming part of this wonderful organization? Learn more about DSAIA board service.

DSAIA Board of Directors

Executive Committee

Kathleen Forney, President
Executive Director
Down Syndrome Association of Minnesota
St. Paul, MN

Lindsay Radford, Vice President
Board Member
Rocky Mountain Down Syndrome Association
Denver, CO

Erin Suelmann, Secretary
Executive Director

Down Syndrome Association of Greater St. Louis
St. Louis, MO

Tracy Garcia, Treasurer
Community Group Leader
Down Syndrome Association of Polk County
Auburndale, FL

Mac Macsovits, Past-President
Executive Director
Rocky Mountain Down Syndrome Association
Denver, CO

Board of Directors (At Large)

Laurie Kowalski
Family Support Coordinator
Upside of Downs of Northeast Ohio
Cleveland, OH

Joe Lintott
Executive Director
Down Syndrome Association of Northern Virginia
Oakton, VA

Brandy Snow
Woodstock, GA


Our staff has a strong commitment to serving the members of our organization. The primary goal of our staff is to make sure that our members receive the training, resources and support they need to be productive leaders within their organization in order to provide the best support and services to their members.

Deanna Tharpe, Executive Director
Bismarck, ND

Before coming to DSAIA in 2010, Deanna was the founder and later Executive Director of Red River Valley Down Syndrome Society, a regional Down syndrome organization that served northeast Texas, southeast Oklahoma and southwest Arkansas. A parent of a handsome and charming young man with Down syndrome, she came to the Down syndrome community after almost 20 years in radio broadcasting. Deanna holds a Bachelors of Science in History from Texas A&M University as well as a Certificate in Nonprofit Management & Leadership from Michigan State University. However, she is adamant that she learns more by listening to DSAIA members who teach her something new everyday.

Contact Deanna for assistance with resources, programming or organizational challenges:

(701) 354-7255  x 101

Courtney Dunevant, Director of Membership & Marketing
Baltimore, MD

Contact Courtney for information about membership or assistance with resources for your organization.

(701) 354-7255 x102

Are you interested in serving the DS community as a board member of the only organization focused solely on the needs of the local Down syndrome association?

Board member applications are being accepted now for the upcoming election in February 2018. 

Learn more.

DSAIA is the most progressive organization in the U.S. and really includes people with Down syndrome in their work. -Patricia Almeida, Movement Down, Brazil


Down Syndrome Affiliates in Action started as a conference bringing together outstanding leadership from Down syndrome organizations around the country. Learn More

Get in Contact

Down Syndrome Affiliates in Action
1335 34th St NE
Paris, TX 75462



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8 am - 5 pm Central

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