DSAIA Digest: WDSD New Campaign Launched

Thu, January 01, 2015 3:21 PM | Anonymous member (Administrator)

World Down Syndrome Day: New Campaign Launched

In early December over 50 leaders from Down syndrome organizations across the United States (and beyond) attended the webinar launch of a new awareness campaign created for World Down Syndrome Day. The campaign, which was created by a coalition of national and international Down syndrome organizations, is based on the concept of "Random Acts of Kindness" and has met with good response from the community. 

Work continues on the toolkit, but interested organizations (or individuals) can view the webinar here. The toolkit can be downloaded during the webinar replay or by clicking here. Expect additions to the toolkit in the coming months including a Spanish translation.

Why Not Make Saving Money for Your

Organization Your New Year's Resolution?

Just 8% of Americans achieve their New Year's resolution. That is unacceptable to Down Syndrome Affiliates in Action. You have your strategic plan in place...let's make it EASY to succeed in 2015 by resolving to save money for your Down syndrome organization. 

Members of DSAIA have been saving money since the launch of the trade association in 2010. Whether it's savings on office supplies, insurance, event software or credit card processing, there is certainly an opportunity to start off the year saving. And in 2015, DSAIA has resolved to research and add even more VIP (Value-Incentive-Purchase) Offers for our members. (Want to get involved? We have VIP Committee openings!)

And consider passing on savings to your membership as well. Check out two offers aimed at families for legal services and monitoring devices. You'll find all of the 22 available offers here.

NDSC and DSAIA Team Up for Adult  Sibling Toolkit Webinar

In February, NDSC and DSAIA are teaming up to help you help adults with Down syndrome and their families. We will be presenting a webinar on customizing the NDSC adult sibling toolkit for families entitled Making the Adult Sibling Toolkit Work for Your Members.

As you know, people with Down syndrome are living into their 40s, 50s, and even 60s, and for the most part, they continue to live in the family home with their parents. We recognize that for many families, not just those affected by Down syndrome, conversations between parents and adult children on the topics of death, medical incapacitation, healthcare directives and wills are difficult. They are often put off, and in worst cases these conversations NEVER HAPPEN.

Adult siblings who want to be involved in their brother or sister's life but are not familiar with the details involved can use this toolkit to have discussions with their parents. They can learn how to be an effective advocate, friend, and perhaps 
caregiver for their sibling after their parents are no longer able. 

As an affiliate, customizing the Adult Sibling Toolkit with state-specific laws regarding wills, trusts, and guardianship, and local resources for transportation, employment, independent living, etc., will be invaluable to your older members. We will show you which sections most frequently need your affiliate input and strategize methods for getting the toolkit into the hands of families and most importantly, help them to follow through with the task of completing it. 

Register today! (This is an open webinar for members and nonmembers alike, sponsored by the National Down Syndrome Congress.)   

I want to tell you what WONDERFUL time I had at the conference. I learned so much and came away with lots of ideas for our organization. -Barb Waddle, The Upside of Downs of Northeast Ohio


Down Syndrome Affiliates in Action started as a conference bringing together outstanding leadership from Down syndrome organizations around the country. Learn More

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