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New Data on U.S. Prevalence of Down Syndrome

Mon, September 11, 2017 7:19 AM | Anonymous member (Administrator)

How many babies with Down syndrome are born in the U.S. annually? According to Dr. Brian Skotko, Board-certified medical geneticist and co-director of the Down Syndrome Program at Massachusetts General Hospital, new research suggests that conventional wisdom of Down syndrome prevalence numbers has indeed changed. Skotko explains more in the latest DSAIA Live! podcast.

The new data shows in 2011, there were 1 in 800 live births of babies with Down syndrome, which is about 5,000 babies with Down syndrome born annually. The research also calculated the reduction rate for that year at 32%, which means that an estimated 3,300 were not born due to elective terminations. A fact sheet containing all of the newly compiled data is available for download online.

Dr. Skotko explains in the podcast that because these new numbers area a change from previous prevalence data, DSAs around the country should update their fact sheets and awareness materials. "We all need to be using the same numbers," says Dr. Skotko.

To listen to the full interview with Dr. Skotko, go to the DSAIA Live! podcast page.


I want to tell you what WONDERFUL time I had at the conference. I learned so much and came away with lots of ideas for our organization. -Barb Waddle, The Upside of Downs of Northeast Ohio

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