News

Affiliates Exhibit at Area ACOG Conferences

Tue, November 01, 2011 9:10 AM | Deanna Tharpe (Administrator)
Affiliates Exhibit at Area ACOG Conferences       

 

ACOG SeMIOver the course of the last couple of months, Down syndrome affiliates have reached out on a national level to medical providers (ahead of the Sequenom test) by exhibiting at American College of Obstetricians and Gynecologists (ACOG) conferences across the United States. Groups coordinated efforts and funding to exhibit at conferences in Kansas City (MO), Plano (TX), Naples (FL), Philadelphia (PA), and Detroit (MI). The exhibitors were able to distribute Understanding a Down Syndrome Diagnosis booklet, Delivering a Down Syndrome Diagnosis booklet, downsyndromepregnancy.org flyers, Brighter Tomorrows flyers, National Down Syndrome Adoption Network flyers, and other timely information such as articles on the latest in Down syndrome research.

 

"My favorite phrase was 'I did not know that!", related Rosa Rocha of DSA of Houston. " I kept hearing it over and over again as attendees learned of all the great available resources for them and their patients." Nancy Iannone (downsyndromepregnancy.org) remarked that conversations with doctors at their booth were 'wonderful'. Likewise, Amy Van Bergen of DSA of Central Florida reported that she heard comments such as "We don't usually see you here at these events...so glad you are" and "Thank you for being here". A couple of the exhibiting groups even had an opportunity to have a discussion with representatives of Sequenom. DSAIA worked with several individuals (including Stephanie Meredith, Mark Leach of DS-Louisville and Nancy Iannone of downsyndromepregnancy.org) to create a "training" webinar to assist groups on being effective exhibitors as they participated in the conferences.

Affiliates and other organizations that participated in the effort are listed below:

Bringing Up Down Syndrome - Southern New Jersey
Celebrate Down Syndrome
Children's Hospital Philadelphia T21 Program
Down Syndrome Association for Families
Down Syndrome Association of Austin
Down Syndrome Association of Central Florida
Down Syndrome Association of Central Oklahoma
Down Syndrome Association of Delaware
Down Syndrome Association of Houston
Down Syndrome Association of Memphis & MidSouth
Down Syndrome Association of West Michigan
Down Syndrome Guild of Greater Kansas City
Down Syndrome Guild of Southeast Michigan
Down Syndrome Indiana
Down Syndrome Pregnancy
Down Syndrome Society of Wichita
Greater Clear Lake Families Exploring Down Syndrome
Knowledge & Information About Individuals with Down Syndrome
National Down Syndrome Society
Network 21 - Central New Jersey
Red River Valley Down Syndrome Society

 

 

 

 

I want to tell you what WONDERFUL time I had at the conference. I learned so much and came away with lots of ideas for our organization. -Barb Waddle, The Upside of Downs of Northeast Ohio

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