Our Newsletter

  • Tue, December 01, 2015 9:22 AM | Anonymous member (Administrator)
    DSAIA Newsletter

    Newsletter                                              December 2015



     For Your Ears Only: Board Members Topical Call

    Tue, Dec 1st
    8 pm ET/5 pm PT

    10 Steps To A Successful Fundraising Campaign

    Tue, Dec 8th
    1 pm ET/10 am PT 


       Miss a webinar? 
    Find it in the Webinar Archiveon the DSAIA website!  Always available to our members any time!


    Tips and Ideas

    20 Effective Nonprofit Mission Statements

    Stop Being a Slave to Social Media Marketing

    How 'Founder Syndrome' Can Take Down a Nonprofit



    Conference Update 



    Charlotte, NC 


    DSAIA Conference

    March 3 - 6, 2016


    Enjoy a Suite Upgrade - when you win our 10 Things in 10 Years Contest!

    Learn more.

    Our sessions are scheduled - great experiences await you!


    Register today!





    Join Today Button 


     Find us on Facebook

     Follow us on Twitter

    Visit our blog

    Join our Mailing List

    Get Ready To Be Energized!


    Dana Lightman, motivational speaker, will deliver the Saturday keynote address at the 2016 DSAIA Conference in Charlotte. Dana specializes in the field of optimism and positive psychology with a doctorate in Behavioral Science. 


    Get ready to unleash your star potential in this energizing mid-morning session! You'll learn proven steps to break through negative patterns and build up positive practices. Dana will also be presenting a breakout session on Saturday afternoon entitled "There's No Such Thing As Difficult People."  Check out the full lineup of sessions on our website.

    Interested in the conference?  Learn about the scholarship opportunities, suite upgrade contests and more on ourwebsite!

    You're Doing Amazing Things - Be Recognized For Them!

    (L-R) Laurie Kowalski, DSAIA Board, Jeremie Ballinger, Tom Fendya of DSAGSL & Kelly Piacenti of MetLife.

    Affiliates in Excellence is in its 3rd year of recognizing the  incredible accomplishments of DSAIA members across the nation. Applications are now open through January 31, 2016. With eleven entry categories and three budget categories, DSAIA has made sure that we are recognizing what our members are doing - no matter where they are located or how large they are. To view last year's winners, click here.

    Is your organization doing amazing things? Stand up and be recognized! Complete this short form to submit your application today! Learn all the details on our Affiliates in Excellence page. Awards will be presented at the annual leadership conference in Charlotte in March 2016, sponsored by MetLife Center for Special Needs Planning.

    For Your Ears Only (Board Members Wanted for Topical Call)

    As a board member, you have a different role (and perspective) as a leader in your organization. DSAIA's latest topical call will focus only on the board member and the issues that they face as the governing body (and sometimes worker bees) of their Down syndrome association.

    When registering for the call, you'll be asked to submit questions to be considered for conversation. These questions will be introduced anonymously but can be commented on in the call by the questioner if they wish.

    The call will be moderated by Sterling Lynk, DSAIA Board President. Registrants of this topical call will be screened for approval. (No staff will be allowed on this call.) 

    Register today!

    Down Syndrome Affiliates in Action

    5010 Fountainblue Drive

    Bismarck, ND 58503



    Copyright © 2015 Down Syndrome Affiliates in Action

  • Thu, November 12, 2015 9:23 AM | Anonymous member (Administrator)
    DSAIA Newsletter
         Conference  Connection                                      
    Energize Your Peak Potential at DSAIA 2016
    Dana Lightman, motivational speaker, will deliver the Saturday keynote address at the 2016 DSAIA Conference in Charlotte. Dana specializes in the field of optimism and positive psychology with a doctorate in Behavioral Science. 

    Get ready to unleash your star potential in this energizing mid-morning session! You'll learn proven steps to break through negative patterns and build up positive practices. Dana will also be presenting a breakout session on Saturday afternoon entitled "There's No Such Thing As Difficult People."  Check out the full lineup of sessions on our website.

    Come "Hangout" With Us Nov 19th!


    Join us on November 19th at 8 pm ET/5 pm PT for a live Hangout On Air! This month, we'll be talking "all things conference" to learn more about the 2016 event and answer YOUR questions. 


    Special guests include members of the DSAIA Conference Committee covering such topics as registration, technology, programming and especially the fun "after hours" events.  Watch it live on YouTube.


    New & Notable



    Affiliates in Excellence - Open for submissions!


    Gain Approval to attend DSAIA - download


    Win a suite upgrade with our 10 in 10 Contest!


    Our Sponsors                                  

    Metlife Logo       Focal Point Logo NDSC Logo       Specs4Us Logo


    Down Syndrome Affiliates in Action

    P.O. Box 2122

    Bismarck, ND 58502



    Copyright © 2013 Down Syndrome Affiliates in Action


  • Tue, November 03, 2015 9:20 AM | Anonymous member (Administrator)
    Tue, Nov 3rd
    8 pm ET/5 pm PT 
    Tue, Nov 17th
    1 pm ET/10 am PT

    Tue, Dec 1st
    8 pm ET/5 pm PT

       Miss a webinar? 
    Find it in the Webinar Archiveon the DSAIA website!  Always available to our members any time!
    Tips and Ideas



    Conference Update 


     DSAIA 2016

    Charlotte, NC 


    March 3 - 6, 2016

    Early Bird Savings have been extended through December 1, 2015! Don't wait - register today!



    DSA Leader Speaks at TEDx

    Deborah Tomai, President of Rio Grande Valley Down Syndrome Association (RGVDSA), recently spoke at TEDx McAllen in McAllen, TX. When the organizers announced the theme for the event (Breaking Borders), the leader/parent suggested that they include a message about disability. After an intense vetting process (including the requirement of submitting a short video), Tomai was excited to be chosen as a presenter. "I focused on three actions:  welcome, respect and include individuals with Down syndrome (and other disabilities) in our community," Tomai said. "I hoped that participating in TEDx would benefit RGVDSA, that we would connect with new families and that we could build our profile locally with educators, medical providers, funders, etc."

    Along with meeting incredible speakers during the practice sessions, Tomai relayed that she had two incredible outcomes from her participation: "One of the other speakers confided in me that she has friends who have a son with Down syndrome, and she wasn't ever sure how to interact with him," Tomai said. "She made a point of telling me that she had invited their family over for a meal, and she gave the young man a tour and talked about her art with him. She said that her perspective had changed, and she had made a deliberate effort to reach out to him."

    "I also received an invitation to be a keynote speaker at a statewide event for physician's assistants in February," Tomai explained. "I'll be speaking to around a thousand medical providers across the state - who care for individuals with Down syndrome at all stages of life.  I'm hoping to provide everyone with resources - including links and contact info for every DSA in Texas."   

    DSAIA will post information on the video when it becomes available. Read the entire interview here.
    Let's Do Lunch (and Learn)!

    Did you know that DSAIA has 96 webinars in our archive? Yes - 96! That is a lot of information...and it can be a lot to digest. That's why we are highlighting a few of our favorites during our DSAIA Cafe Series beginning November 11th! Yes, let's plan to watch a few awesome presentations over lunch together. No matter what time zone you are in, the presentations will air at NOON. Yes, YOUR 12 noon, no matter what! So, take a moment to fill both your belly AND your mind with the following delectable menu items:
    • Wildly Successful Events (Nov 11th)
    • Firing Lousy Board Members (Nov 18th)
    • Teen & Adult Programs That Work (Nov 25th)
    • The "LikeAble" Organization (Dec 2nd)
    • Building a Productive Board (Dec 9th)
    • Adding Top Level Staff (Dec 16th)
    Register for these and other upcoming events on the DSAIA website.
    Share Your Walk With Others!
      Now that Walk Season is are over for most of us, how about sharing all the wonderful promotional pieces that your organization created with other members of Down Syndrome Affiliates in Action?  

    We are looking for all of you to help us build a valuable, informative, and diverse Resource Library for all of us to use!  The Resource Library is available for all members of DSAIA so that we can share ideas and items without having to create things from scratch.  In an effort to jump start the use and content of the library, we are inviting all of you to post your Walk promotional items today! Each time a DSAIA member submits an item, they will be entered into a drawing for some awesome DSAIA merchandise!

    The deadline for the submission contest is November 30, 2015. Members can submit their items here.

    Down Syndrome Affiliates in Action

    5010 Fountainblue Drive

    Bismarck, ND 58503



    Copyright © 2015 Down Syndrome Affiliates in Action


  • Thu, October 15, 2015 9:19 AM | Anonymous member (Administrator)
    Crimson Tide Coach to Headline the 2016 Conference
    Former Alabama Crimson Tide head football coach Gene Stallings will be the keynote speaker at the 2016 DSAIA Annual Leadership Conference in Charlotte, NC. Stallings, who led the 1992 Crimson Tide to a national championship, was inducted into the College Football Hall of Fame in 2010. However, the Down syndrome community might know him better for a book he penned about his son with Down syndrome, Johnny, entitled Another Season

    The conference schedule is now available for viewing and the Early Bird deadline to save an additional $100 off registration is November 1, 2015. To view the schedule, register for the event or to explore sponsorship options, visit the conference website
    DSAIA Offers Opportunity for Conference Scholarships

    Attending DSAIA is a fantastic opportunity for many Down syndrome organizations..some of which bring numerous attendees. But we realize that some group who have a small budget need the conference the most. And that is why we'd like to help those organizations (members and nonmembers) bring as many people as they can to this incredible event.

    2016 Small-Group Scholarship Applicant Criteria:
    • Applicant must not have received a scholarship for the 2014 or 2015 DSAIA Leadership Conference;
    • Applicant must be a staff or board member from a Down syndrome organization with 5 or fewer employees, (not an industry partner or consultant member);
    • Only one applicant is allowed from each individual organization (more than one application can result in exclusion from consideration); and
    • Applicant's organization must have a 2015 budget of $50,000 or less or show extenuating circumstances.
    Complete your application today here or find more information on our website.


    Down Syndrome Affiliates in Action

    5010 Fountainblue Drive

    Bismarck, ND 58503



    Copyright © 2015 Down Syndrome Affiliates in Action


  • Wed, September 02, 2015 10:51 AM | Anonymous member (Administrator)

    To view this newsletter online:

    Unlike Unicorns, Successful Teen/Adult Programs Do Exist!

    Successful teen and adult programs are not unicorns in the forest - they do exist! And some are extremely successful! Great outcomes come from great ideas and great planning. Down Syndrome Association of Greater Cincinnati hosts an Independent Living Retreat, a weekend-long retreat for adults (18 & up). The retreat focuses on community service, learning new skills, making friendships and gaining independence. (Be sure and watch the video included in this newsletter!)

    Down Syndrome Association of Jacksonville (DSAJ) facilitates a wellness and fitness program for their teens and adults. "Participants have lost anywhere from 3 pounds to over 10 pounds in one session!" says Desiree Jomant of DSAJ. "Individuals who have participated in multiple program sessions have seen weight losses of as much as 65 pounds!" 

    In an upcoming DSAIA webinar, you'll learn about these programs as well as three others...find out more by checking out Teen & Adult Programming That Works!,scheduled for September 17th.


    Adopt-A-Jean Student Project

    An exciting new program from Downs Designs tackles both Down syndrome awareness and a charitable cause at the same time. Downs Designs, well-known within the Down syndrome community for producing clothing (jeans in particular) that are specially made for individuals with Down syndrome, has recently created a charitable program called Adopt-A-Jean. Adopt-A-Jean provides free jeans to an individual who might not otherwise be able to purchase them. However, they've gone one step further to create a project opportunity for students or groups who wish to fundraise for the program.

    The Adopt-A-Jean Project provides the student/group with a packet that includes information on WHY an individual with Down syndrome might require special clothing or why their NBZ (no button, no zipper) jeans might be a valuable tool for someone with another type of disability. The awareness piece was important to Karen Bowersox, owner of Downs Designs and grandmother to a person with Down syndrome. "What we are trying to do is reach out to the young people today and educate them on why people with disabilities often don't look like their peers," she said. "At the same time, through our Adopt-A-Jean program, we want to offer a solution." Downs Designs also offers NBZ jeans (no button or zipper) in men's and boys' sizes which differ from the original style. Recently, Downs Designs has begun the process of attaining their 501c3 status as a charitable organization in order to continue their awareness work.

    For information on the Adopt-A-Jean project, go to: 


    Huge Savings on Event Shirts

    The latest VIP (Value-Incentive-Purchase) discount offer for DSAIA members is all about low prices for your next event t-shirt order. Partnering with Will Enterprises, a nationally-known and well-respected apparel company, DSAIA members can purchase shirts for as low as $2.59 apiece. Imagine your white shirt with four-color front and one-color back for that amazing price! Need a color shirt with the same options? It's only $3.69 a shirt!

    DSAIA strives to save our members valuable operating funds on items that they already purchase...and that is why we've brokered this incredible deal with a trusted national company. View the offer and the complete pricing chart here:

    Compensation Survey

    Recruiting and retaining the best possible staff to carry out your organization's mission can be more than just a little difficult. And often, the biggest questions boards have is centered around compensation and benefits. In our effort to be a complete resource for Down syndrome organizations, DSAIA has created a staff compensation survey for DSAs in order to provide more complete data for our community.

    Even if you are an organization without staff, please take a moment to complete the initial questions so that we can provide a complete picture in the final report. Your assistance is greatly appreciated in this effort.  And special thanks to one of our Executive Director Leaders' Circles for seeing the need and creating the survey!



    Welcome to our newest member!

    See DSAGC's Independent Living Retreat in action!

    Conference Update

    Early Bird Registration is Open!!

    Save $100 per person before November 1, 2015!


    Upcoming Events


    Teen and Adult Programs That Work!

    Sept 17, 2015

    Grantwriting for Organizational Survival

    Oct 7 & 14, 2015

    Bodies & Boundaries: How To Address Questions About Sexuality from Your Membership

    Nov 17, 2015

    It's time to get DS-Connect'd! Find out how to add one of these incredible ads to your next newsletter! Contact DSAIA for more information!


    18 Email Subject Line Strategies That Will Increase Your Open Rates!

    Preparing for Your Board Meeting

    hy Nonprofits Matter

     Fundraising Delusions Nonprofits Suffer

  • Tue, August 04, 2015 1:10 PM | Anonymous member (Administrator)

    Bloomington DSA Achieves Accreditation

    Down Syndrome Family Connection of Bloomington, Indiana (DSFC) was recently awarded Basic Accreditation status through Down Syndrome Affiliates in Action. Cyndi Johnson, DSFC Board President, said that their organization wanted to pursue accreditation status for many reasons including ensuring that their organization executed nonprofit best practices at every level. "The board was involved all along the way," Johnson explained. "It forced us to review our policies, procedures and programs. The process itself was beneficial to our organization." 

    The group plans to utilize their accreditation award to inspire donor confidence within their community. "We feel like it is a way to set ourselves apart from other nonprofits vying for funding," Johnson said. When asked what advice or suggestions DSFC would offer prospective accreditation applicants, Johnson encouraged groups to have one person coordinating the effort but to be transparent with the board at all times so that everyone learns from the process and can be supportive. One more piece of advice from DSFC: Design a central location for all of your documents (policies, procedures, minutes, bylaws, etc.). It will be helpful in the process but will hold future benefits as well.

    DSFC is the second DSAIA member to receive accreditation status. Down Syndrome Association of Central Florida was awarded accreditation status in 2014. If your organization is interested in applying for accreditation, please visit our website for more information including the Accreditation Checklist.


    2016 Conference Registration Open

    Early Bird savings are now in full swing for the 2016 DSAIA Leadership Conference. Scheduled for March 3-6, 2016 in Charlotte, North Carolina, the 2106 event will mark TEN YEARS of the annual leadership conference. Attendees should plan to celebrate nonstop with incredible educational and networking opportunities. DSAIA has made a commitment to bring in nonprofit experts and exciting new topics each year. The conference committee is already working incredibly hard to do just that - plus present some surprises to the schedule to keep the event evolving.

    Registration is available on the DSAIA conference website. Hotel reservations (at our discounted conference rate) can be made now as well. Don't forget - early registrants take advantage of incredible savings! Save $100 per person when you register before November 1, 2015.  (DSAIA members can save an additional $200 per person when using the Member Discount Code found under the Members Section of our website.)


    To Deborah Tomai and the Rio Grande Valley Down Syndrome Association for being included in a TED TALK!


    Conference Update

    March 3-6, 2016
    Sheraton Charlotte
    Charlotte, NC

    Early Bird Registration is Open!!
    Save $100 per person before November 1, 2015!


    Upcoming Events


    Are You Ready for a Capital Campaign?

    Aug 6 & 20, 2015
    1 pm ET/10 am PT

    Register now!

    Grantwriting for Organizational Survival

    Oct 7 & 14, 2015
    (Registration open soon!)

    Bodies & Boundaries: How To Address Questions About Sexuality from Your Membership

    Nov 17, 2015
    (Registration open soon!)



    How Your Donors View Money

    Best States for Disability Services

    Jacob's Turn

    DS-Connect Now in Spanish!

    5 Fundraisng Delusions Nonprofits Suffer

  • Tue, July 07, 2015 10:15 AM | Anonymous member (Administrator)

    Are You Ready to Move Up to ED?

    Becoming an executive director is a huge transition. To succeed, you must rely on your experiences, strengths, and expertise. In addition, you must learn new skills, engage in new behaviors, work well with other people, know your leadership style and be aware of your strengths and weaknesses. Be honest. Nonprofit executive leadership requires a lot. It is an all-encompassing job.

    Join DSAIA for our upcoming webinar "Moving Up To Executive Director", presented by Joanne Oppelt, MHA, on Wednesday, July 15th, at 1 pm ET. Joanne is the Executive Director of CONTACT We Care.

    Moving Up will help you:

    • Understand the complex nature of nonprofit executive leadership 
    • Identify the skills and characteristics of successful executive directors
    • Gain insight into the unique obligations nonprofit executive directors face
    • Manage multiple priorities
    • Prepare for the transition to your role as executive leader
    • Anticipate challenges inherent in your first year as executive director

      Register today! 

    Good ED Interview Questions (& How To Answer Them)

    A recent study reports that as many as two-thirds of nonprofit leaders will retire in the next 5 years! Joan Garry (nonprofit consultant and instructor) reminds us of this incredible tidbit of information in her latest blog post and has some great interview tips for those coming from the corporate world into positions with nonprofits (or for those already here). Here are the highlights from the article:

    1. Tell us about your previous nonprofit experience. 
    How do you perceive the differences in the sectors?This is really important. You need to have played in the nonprofit sandbox in 
    someway. I’m hoping you have volunteered, been involved in a PTA, or in your house of worship. Consider the differences between that and your corporate job.If you haven’t done any of those things, as a member of the search committee, I am going to be very skeptical indeed.

    2. What is your previous fundraising experience? 
    Unless you have done some real nonprofit fundraising, you might need to be creative. Talk about attributes. “I have what it takes to ask for money because I understand that it’s about building and cultivating relationships and matching individuals with the cause. I am a quick study and my passion for this work trumps any anxiety about asking. And truthfully, I understand that money = programs so my anxiety level here is very low.”

    3. Why are you passionate about THIS organization and THIS mission?  
    You have got to make this case. You can’t just be a fabulous PR executive that wants to do external relations and make a difference. You have to make the case that there’s a specific connection between you and the organization.

    Read all 10 questions/answers on Joan Garry'blog.

    Joan Garry is a nonprofit consultant who works with nonprofit leaders, assisting with crisis management, executive coaching and the building of strong management teams to support the work of the CEO. She also teaches nonprofit media strategy as a professor at the Annenberg School for Communications at the University of Pennsylvania, and is a blogger for The Huffington Post

    Resources for the ED (& Those Hiring One)

    The DSAIA Resource Library and Webinar Archive includes many resources/trainings on hiring and managing top level staff. Below you'll find a list of a few of the many resources.

    Webinars & Conference Presentations:

    • Adding Top Level Staff
    • How To Lose an Executive Director
    • Attract, Build and Retain Terrific Staff
    • Hiring, Supervising a High Performance Management Team
    • We Are Hiring Staff (How Do We Make Sure We're in Compliance?)
    • Hiring First Time Staff:  Opportunities & Challenges

    Resource Library Documents:

    • Accountability & Reporting Chart
    • Board Chair & Executive Director Partnership Chart
    • Employee Handbook/Manual
    • Employee Agreements/Contracts
    • Executive Director Job Descriptions
    • Employee Goal Setting & Evaluations

    Members can access resources at their convenience. Not a member? Learn more about the benefits by scheduling a free orientation with DSAIA staff and board members. 

  • Mon, June 01, 2015 2:49 PM | Anonymous member (Administrator)

    Volunteer Value Hits $23.07 An Hour

    The value of a volunteer hour was up 52 cents to $23.07 in 2014, according to the latest estimate released by Independent Sector (IS). In a recent article by Mark Hrywna in The Nonprofit Times (NPT), the values were reported to range from a low of $19.31 in Arkansas to a high of $39.86 per hour in the District of Columbia. The "average" figure is indexed by IS to determine state values and then increased by 12% to estimate for fringe benefits. The estimated value in your state can be used to value the contributions of volunteers to your organization.

    According to NPT's article, the value of a volunteer hour crossed the $20 mark in 2008 and was only estimated at $16.27 in 2001. About 62.6 million Americans gave 7.7 billion hours of volunteer service worth $173 billion in 2013, according to the Corporation for National and Community Service. You can review IS's information here.

    New VolunteerMatch Book Is Al About Ideas

    VolunteerMatch’s new book on volunteer engagement for nonprofits, Volunteer Engagement 2.0: Ideas and Insights Changing the World, is now available for purchase. Author Robert Rosenthal asked 35 of the smartest volunteer engagement consultants, trainers, and practitioners to share their thoughts on what’s truly important for transforming volunteerism into lasting impact. The result? An awesome collection of “ideas”. 

    Rosenthal (in a recent VolunteerMatch blog post) explains that the publication strikes a balance between actionable strategy and broad discussion of the issues surrounding volunteerism. “Volunteer Engagement 2.0 helps readers craft a strategy that reflects their organization’s mission,” said Rosenthal, and lists some of the ways you’ll be able to get immediate benefit from Volunteer Engagement 2.0: 

    • Track the history of volunteerism, as well as the social, cultural, and technological shifts that will shape its future.
    • Keep current volunteers on board, and engage additional volunteers, donors, and board members.
    • Use new tools and trends such as social media, microvolunteering, virtual volunteering, and hackathons.
    • Recruit corporate partners, adopt skilled volunteers, and identify pro bono resources.
    • Quantify and evaluate your volunteer program’s effectiveness, and adjust your strategies. 

    You can purchase the book here.

    Do you have volunteer materials to share with other DSAIA members? Learn how to submit your items to the DSAIA Resource Library by emailing us today at

  • Fri, May 01, 2015 10:43 AM | Anonymous member (Administrator)

    Publication Highlights Value of

     Employees with DS

    "The value that employees with Down syndrome can add to organizations" a study performed by McKinsey & Company for the project Another Glimpse from Alana Institute, was released in March 2014 and showed that the inclusion of people with Down syndrome generates positive impact in five of nine areas that measure organizational health, such as leadership, customer satisfaction, culture and climate, team motivation, coordination and control. The study also revealed that a healthy company is more likely to present an above-average profit with the inclusion of people with Down syndrome. Marcus Frank, senior consultant at McKinsey, presented the study at the United Nations (UN) in New York, on World Down Syndrome Day. During his speech, Marcus said that McKinsey accepted the challenge of this research because they believe that "companies should promote inclusion at the workplace, not out of obligation but because of the improvements in competitiveness," he said.   

    This year's UN theme is "My Opportunities, My Choices – Enjoying Full and Equal Rights and the Role of Families" and it has total synergy with the McKinsey’s study. "This study is an incentive for parents to continue to invest in the education of their children with Down syndrome because the market is seeing their value. They are recognizing the potential of these young people and, therefore, companies are opening their doors to hire more of them, " says Claudia Moreira, project coordinator of Another Glimpse. The survey interviewed 2,000 employees from several companies and 83% of them said that the presence of a person with Down syndrome causes the leader to become more able to resolve conflicts. The consultancy also spoke with 20 human resource leaders of national and foreign companies, as well as directors of institutions that support people with intellectual disabilities in Brazil, USA, Canada and Europe. The project, Another Glimpse (or Outro Olhar in Portuguese), was born with the mission of raising awareness about the singularities and skills of people with Down syndrome. It believes that a society can only win when it recognizes the potential of diversity that will bring us a better future. It does this through the production and dissemination of knowledge about Down syndrome. Learn more at

    The publication is available for download here Instituto Alana is a member of DSAIA.

    Dealing With Competition Within the DS Community

    DSAIA has scheduled a"Topical Call" on Wednesday, May 6, 2015 from 8 pm -10 pm ET to discuss a very interesting and popular topic of conversation lately in the Down syndrome community: non-DSAs as competition. Local DSAs are seeing other organizations come into their area which may threaten their member and donor bases. These organizations may or may not be Down syndrome-focused, but they do target services to individuals with Down syndrome and possibly duplicate services. 

    Over the years, the local Down syndrome organization has wrestled with other DSAs who might serve overlapping areas (or even the same area). This is nothing new. However, several organizations have expressed that this new situation with centers springing up in their area brings a new set of issues and can impact the local DSA negatively even when a partnership is established. 

    In this call, DSAIA will try to delve into the following questions (among others): Is a non-DSA a threat to existing organizations? Can the non-DSA complement an existing organization?  What factors need to be considered?

    This is a members-only call moderated by DSAIA's Executive Director, Deanna Tharpe. Others can attend the call by invitation-only. If you would like to learn more about the call or register, go to DSAIA's Upcoming Trainings page for details. 

  • Wed, April 01, 2015 3:05 PM | Anonymous member (Administrator)

    How Leaky Is Your Bucket?

    Even some of the finest fund development programs have leaks—pockets of inefficiency that, left unaddressed, will continue to reduce the support the nonprofit organization receives from its fundraising program. "The Leaky Bucket:What’s Wrong with Your Fundraising and How You Can Fix It"is a groundbreaking webinar that will show you how to find the leaks and plug them quickly and effectively. 

    Don't miss this two-part webinar series which airs  Tuesday, April 7th and Tuesday, April 21st at 1 pm ET/10 am PT. Each webinar will be 1 1/2 hours of great information for your organization. Free to members of DSAIA, register today! Not a member, you can register for the low cost of $75. 

    Affiliate of the Year Awards

    Congratulations to our Affiliate of the Year winners for 2014. The Affiliates in Excellence Awards, sponsored by MetLife, are presented at the annual leadership conference and include a number of categories.

    To view the entire list of winners (and their submissions), visit the DSAIA website. Your affiliate can be in the spotlight next year - award categories will remain the same. Consider your submissions now!

    Book Spotlight: An Uncomplicated Life

    In An Uncomplicated Life, the parent learns as much about life from the child as the child does from the parent. Through her unmitigated love for others, her sparkling charisma, and her boundless capacity for joy, Jillian has inspired those around her to live better and more fully. The day Jillian was born, Paul says, was the last bad day. As he lovingly writes, “Jillian is a soul map of our best intentions”—a model of grace, boundless joy, and love for all of us.

    The author, Paul Daugherty, has been a sports columnist for the Cincinnati Enquirer since 1994. He has covered nearly every major American sporting event, as well as five Summer Olympic Games.  He is the author of Fair Game, a collection of his sports columns, and coauthor of books with Chad Johnson and Johnny Bench.  He blogs daily at The Morning Line on  He lives in Loveland, Ohio, with his wife, Kerry. The book was released in March by Harper Collins Publishers and can be purchased in hardcover or e-book form through various outlets.

I want to tell you what WONDERFUL time I had at the conference. I learned so much and came away with lots of ideas for our organization. -Barb Waddle, The Upside of Downs of Northeast Ohio


Down Syndrome Affiliates in Action started as a conference bringing together outstanding leadership from Down syndrome organizations around the country. Learn More

Get in Contact

Down Syndrome Affiliates in Action
PO Box 7192

Missoula, Montana   59802



Member Access

Click Here

Powered by Wild Apricot Membership Software