Ready-to-go Sibling Workshops

Join our recent conversation with Brian Skotko, MD, MPP and Sue Levine, MA, CSW as they talk about their new online ready-to-go sibling workshop toolkit (which you just might hear more about at #DSAIA2020 in Orlando)

Let Us Take You To Our Leader!

In February, DSAIA's board selected a new president. She's been so busy, this is the first time we've had a chance to sit down with her and chat about her vision for the organization in the next two years. Now with a few months under her belt, we finally get to meet Lauren Camp.

You Matter, Too!

Down syndrome association leaders give and give and give...and often suffer from compassion fatigue. How can you, as a leader, learn how to best manage your stress in order to be there for your families? DSAIA talks with Jena Wells about her upcoming keynote at DSAIA 2019 in St. Louis entitled "You Matter, Too!".

Brian Donovan

DSAIA 2019 Keynote Speaker Brian Donovan (the man behind Kelly's Hollywood as well as actor) takes a minute to talk about his sister Kelly, his nonprofit theater program, and yes, even Naruto!

Fundraising is Not Panhandling, It's OK to Ask Again!

You've just finished your walk where you asked a LOT of people for money. Maybe you are part of the United Way campaign where you are STILL asking a lot of people for money. Wait, there's Giving Tuesday coming up. And what about your end-of-year appeals? Do you feel like you always have your hand out? Or maybe you're wondering how you ask for money after you just asked for money? We bring in Ellen Bristol of Bristol Strategy Group to help us discuss this conundrum.

Building a Better Cookie Jar

Embezzlement in the nonprofit sector is more common than you think. Recently, the Down syndrome association community is abuzz with the news that another organization has been affected and legal action is taking place. The question becomes - how can you as a DSA leader (board or staff) keep it from happening to you?

Embezzlement not only hurts an organization, it hurts the people it serves and the community that supports it. We can't expect to prevent it 100%, but a few simple steps can reduce its likelihood substantially. But perhaps the most important step is to set an atmosphere and climate of accountability.

In this month's podcast, we'll discuss both internal controls and the role of the board in oversight of the nonprofit. Our guests are Amy Van Bergen, former executive director of Down Syndrome Association of Central Florida, and Jane Page-Steiner, nonprofit consultant and BoardSource certified trainer.

Founder's Syndrome

We are talking Founder's Syndrome with guests Mandy Pearce and Marie Palacios of Funding For Good. Defined as "a disease in nonprofits that has it genesis in the inspiration and personality - or personalities that created the organization". It's often a topic of discussion at our leadership conference, in leaders' circles, and around the cocktail table after sessions are over. And this discussion does not disappoint!

Check out the blog post that inspired this interview:…nders-syndrome/

What's in a Name?

Ever wondered if your DSA should change its name? And if it did, what would that entail? Shanon McCormick sat down with Deanna Tharpe at DSAIA 2018 to discuss the new Down Syndrome Association of Connecticut name.

How DSAIA Accreditation Made Our DSAs Better

Lisa French of Down Syndrome of Louisville and Lisa Wells of Down Syndrome Indiana sit down with Deanna Tharpe to discuss why they chose to pursue accreditation through DSAIA and the benefits of success.

Prenatal Outreach

Stephanie Meredith (National Center for Prenatal and Postnatal Diagnosis at the University of Kentucky) and Heather Bradley (Down Syndrome Diagnosis Network) talk about prenatal outreach resources available to our community. Courtney Dunevant talked to the duo after their presentation at the DSAIA conference in Cincinnati in February 2017.

5 Fundraising Tips from an Event Fundraiser Pro

Katie Coughlin, Special Event Coordinator from LuMind Research Down Syndrome Foundation, gives us a few pieces of advice when working on your next fundraising event (just in time for walk season) and discusses the new exciting things at LuMind this year.

I want to tell you what WONDERFUL time I had at the conference. I learned so much and came away with lots of ideas for our organization. -Barb Waddle, The Upside of Downs of Northeast Ohio


Down Syndrome Affiliates in Action started as a conference bringing together outstanding leadership from Down syndrome organizations around the country. Learn More

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Down Syndrome Affiliates in Action
PO Box 7192

Missoula, Montana   59802



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