State of down syndrome  project

DSAIA members have created a work group to gather usable data on the current state of Down syndrome for use on the local and national level. 

This project will help the Down syndrome community to create agendas that tackle the most pressing problems. If the Down syndrome community is all looking at the same indicators, it could have a huge impact! The data may help us locally and nationally to make a case for funding. The data will be of great help when testifying before legislators on both a local and national level. The data can be reported at the DSAIA conference each year. The possibilities are many!

If you would like to be involved in this project, contact us at

Please watch for upcoming survey opportunities!

We are incredibly proud of our growth and results in 2017.  However, none of this could have been possible without support from DSAIA....the membership has been necessary for past successes, and will continue to prove vital for future growth.

-Dawn Neuffer, Down Syndrome Association of Wisconsin


Down Syndrome Affiliates in Action started as a conference bringing together outstanding leadership from Down syndrome organizations around the country. Learn More

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Down Syndrome Affiliates in Action
1335 34th St NE
Paris, TX 75462



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